Minda believes that every individual, including those living with an intellectual disability, should have equal rights and access to compassionate healthcare. This includes the profound right to experience a respectful death in their own home, surrounded by those who care for them.
Promoting the option of a respectful death at home is an essential part of Minda’s Service Excellence Framework.
Since the inception of this initiative in mid-2024, we have supported three individuals to pass away in the comfort of their own homes, with dignity. Additionally, two others are currently receiving palliative care at home, honouring their personal choice to avoid hospital settings.
Why It Matters
People living with an intellectual disability often face unique challenges, including communication barriers and the anxiety of hospital environments.
Hospital settings, with unfamiliar faces and procedures, can feel overwhelming. By providing the option to die at home, Minda supports holistic, person-centred care that includes family, friends, support staff, and trusted healthcare professionals.
Our Commitment
This initiative began as a project within the Service Excellence Framework and has now been successfully embedded into our service delivery. To ensure the best care possible, we have provided tailored training for client-facing staff, enabling them to deliver end-of-life care with sensitivity.
We have supported housemates and friends of those receiving end-of-life care, promoting an environment of understanding, compassion, and empathy.
We have also partnered with key stakeholders such as Southern Adelaide Palliative Services (SAPS), Metropolitan Referral Unit (MRU), Calvary Community Care, SA Virtual Care Services (SAVCS), and the State-wide Palliative Care Navigators to enhance our service.
The Impact
Through collaboration with our partners and dedication to service excellence, Minda has established an end-of-life process known as Dying with Dignity. This initiative not only empowers choice but also ensures respect and dignity for every individual we support.
Looking ahead, our efforts will contribute to a retrospective research paper in partnership with Canberra and Flinders Universities. This research will share insights and influence the wider disability sector across Australia, promoting equality in life and death for people living with disabilities.