Gathering Information

Never be afraid to ask medical professionals as many questions as you can and if they can’t provide you with all of the answers, get a second opinion from another doctor or specialist.

Although searching for information online can be useful, make sure the website is trustworthy, offers unbiased information and verify the information with other research. Get a balance of information by looking at reputable research information and government data as well as personal stories from discussion groups and forums.

Keep records from your fact-finding as well as a list of questions and ideas and to share with your medical team and support networks.